Lorenzo Odone

Lorenzo Odone
Born (1978-05-29)May 29, 1978
Washington, D.C., U.S
Died May 30, 2008(2008-05-30) (aged 30)
Fairfax, Virginia, U.S
Known for Adrenoleukodystrophy patient

Lorenzo Michael Murphy Odone (May 29, 1978 – May 30, 2008) was an Italian-American with adrenoleukodystrophy (ALD) whose parents, Augusto and Michaela Odone, sought a treatment for the disease and invented Lorenzo's oil.[1]

He was also the subject of the 1992 film Lorenzo's Oil which starred Nick Nolte and Susan Sarandon,[2] and of the 1990 TV-movie Voglia di vivere, starring Tomas Milian and Dominique Sanda.[3] Additionally, Phil Collins translated a poem written by Michaela to Lorenzo to music for the song "Lorenzo" in his 1996 album Dance into the Light.

Quest for a treatment

In 1984, when diagnosed with adrenoleukodystrophy, there was not much information available about this disease, let alone a treatment. His parents therefore decided to take matters into their own hands, and began researching myelin and adrenoleukodystrophy. They eventually invented "Lorenzo's oil", which they hoped would stop the progress of the disease. It is a mixture of fatty acids refined from olive and rapeseed oil.[1]

Death

Odone died at his home in Fairfax, Virginia on May 30, 2008, 24 years after his first diagnosis, and one day after his 30th birthday, due to complications from aspiration pneumonia, with his father Augusto and an old family friend, Oumouri, at his side.[4]

See also

References

  1. 1 2 "Lorenzo Odone Subject of Lorenzo's Oil, the film portraying his parents' quest to cure his degenerative disease". The Telegraph. 1 Jun 2008. Retrieved 14 June 2010.
  2. ↑ "About Lorenzo, his Parents, and Oumouri". The Myelin Project. Retrieved 2010-01-02.
  3. ↑ Augusto Odone. L'olio di Lorenzo. Una storia d'amore. Mondadori, 2011. ISBN 8804611081.
  4. ↑ "Obituaries: Lorenzo Odone". The Telegraph. 1 Jun 2008. Retrieved 5 September 2011.

Further reading


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